Most of us probably already knew this but sometimes it is reassuring to have research to back up our opinions. In a recent study in the Journal of Children's Orthopedics, the researchers compared parents and children's reports on the difficulty of daily activities and the severity of symptoms that the children with spina bifida and muscular dystrophy experience. The correlation of responses was high for objective and subjective responses. The researchers concluded that children with spina bifida and muscular dystrophy are "capable of understanding and assessing their disability".
I know I say this often, but always remember to ask the children who you interact with about their symptoms, opinions and goals.
Reference: Susan C. McLimont1,Janice L. Owen and James G. Wright, Can children with spina bifida and muscular dystrophy participate in their own health status evaluations? J Child Orthop March 2010 DOI: 10.1007/s11832-010-0248-8